Types of clinics
These are the main CF clinics - you will normally see a nurse, a doctor, a dietitian and a physiotherapist.
Gloucestershire Royal Hospital Clinic
|Four times a year, all day
||Gloucestershire Royal Hospital Surgical Outpatients
CF Diabetes clinic
|Last Thursday afternoon of the month
We try to see all patients with CF diabetes at least once a year in a CF diabetes clinic run by Dr Rami Fikri, Consultant Diabetologist. You will also see the rest of the MDT as usual.
Inhaled therapy clinics
This specialist clinic, run by the physio team, is for trials of new inhaled therapies (e.g. an inhaled antibiotic, or a mucolytic such as mannitol).
Drop-in attendances ("ad hoc reviews")
Sometimes we will see you outside the main clinic times, for example if you become unwell suddenly or you need a review starting, mid-point or stopping courses of antibiotics. Typically you will only need to see one or two staff remembers.
How often do we want to see you?
This varies a lot! We normally see people every 2 or 3 months, but some might need to be seen more frequently and for a very few it's appropriate to be seen every 6-12 months.
Can't you just Skype me?
We're trying sort this actually! Skype doesn't work very well for our purposes, but we are setting up a system which will allow us to have very high quality video consultations with you at home on your laptop, PC or mobile - watch this space!
Why is clinic important? (I'm in hospital all the time, can't you just see me then?
We need to get to know you, and see you when you're well as when you're not.
- Consider whether your medication or physio regime should be changed
- Monitor your weight and lung function
- Monitor blood tests and let us
- Submit your sputum sample
- We need to get to know you, especially when you are new to the team - and let you get to know us. We're going to spend a long time together!
- Discuss how you are fitting your treatments into your life
- Make sure you don't need a course of antibiotics
- Allow you to pick up your medication - let us know 72 hours before clinic and we can drop off a prescription to Boots for you, ready for you to pick up when you come to clinic!
How should I get ready for clinic?
Here are a few tips:
- Write down anything you really need to discuss so you don't forget
- Bring a list of questions you might have for the team
- If you can't make your clinic appointment, or think you're going to be late call us - we might be able to use your appointment for someone else
- If you need to pick up some medication from pharmacy, let us know (e.g. via email) at least two working days ahead to give us a chance to write the script and hand it in to BRI pharmacy, so you can pick it up when you come to clinic)
- If you like bring us a fresh sputum sample - but only if you have a proper sputum pot to bring it in (see our leaflet about how to collect a sputum sample)
What will happen in clinic?
- You'll be allocated a single clinic room - and you'll have all your tests and assessments in the room
- With your consent, we'll take a photo of you if we don't already have one - this helps the team get to know you more quickly! If you'd rather provide your own photo, or don't want a photo taken at all, that's fine - just let us know
- You'll have "obs" (pulse, blood pressure, oxygen sats) done, normally by a nurse
- You'll have your spirometry checked
- You’ll be asked to provide a sputum sample or cough swab (make sure you have a pot handy when you do your spirometry test as this often makes people cough sputum up)
- You'll see one or more of: doctor, nurse, physio, dietitian, pharmacist, psychologist
- There might be a bit of waiting around. We know it is frustrating waiting in a room on your own - we really do try to keep this to a minimum but rotating 4-6 staff members around 8-12 patients is tricky!
- There is guest wifi every where in the BRI (look for "UHB Guest") - bring a phone or tablet (or maybe just a book) to keep yourself occupied.
If you can't make it to clinic
Call us on 01173427757 - we might be able to use your appointment for someone else