No one likes being in hospital but we aim to make your experience as pleasant as possible. We care for around 240 admissions per year, most admissions being 10-14 days long. We normally have 5-15 people with CF under our care in hospital at any one time (in addition to around 5-15 on home intravenous antibiotics). All CF patients will be accommodated in a side room.
- Free wifi is available for everyone in all areas of the BRI – look for “UHB Guest”. You can stream video, chat and surg online.
- TVs, DVD players (and DVDs!) and game consoles are available
Sister: Sarah Beech
A900 is on level 9 in the new Terrell Street building of the BRI and has twelve side rooms, all with en-suite facilities, a desk, a fridge, a wardrobe, and TVs with DVD players.
Patients with B cepacia infection must never be admitted to ward A900 for infection control reasons.
Sister: Judith Bowell
A524 is in the Queen’s Building (level 5) and has two side rooms with en-suite facilities and air conditioning. Rooms have a bedside TV and a fridge.
Sister: Adelaide Campbell-Upton
A525 is next door to A524 and is the respiratory High Care unit. You may need admission or transfer to this ward if you are particularly unwell, require non-invasive ventilation or if you have a particular infection.
On occasion we might need to admit you to a different ward, most commonly the Acute Medical Unit (A300). You will always be accommodated in a side room, and will be cared for by the same BACFC team members as usual; we will do our best to move you to 900, 524 or 525 as soon as is possible.
Exercise is a really important part of maintaining and improving your health and the physio team will help you establish a programme which works for you. You may be provided with equipment in your room (e.g. exercise bike, trampoline) or go down to the physio gym. Or maybe a run around the back of the hospital, or take one of us on at Wii Sport…
How long will I have to wait for a bed?
Our goal is always to admit you directly to a bed on a A900, 524 or 525 – we put you on a waiting list and negotiate daily with the Clinical Site Management team to admit as many as we can, in order of clinical need. Rarely, if you need to come into hospital urgently we may need to ask you to wait in the Emergency Department until a bed becomes available.
We will keep you updated (normally daily) as you the bed situation. If you feel you are getting worse whilst waiting for a bed please let us know.
We know it can be frustrating waiting for a bed but please remember that we want to get you into hospital as much as you do! The BRI is a busy hospital and is subject to huge bed pressures – and, as a person with CF we need to make sure you are admitted to the right sort of bed.
If you present to the BRI Emergency Department unwell and require admission you will always be admitted to a single room.
What do I need to bring in with me?
- Clothes, toiletries (emergency toiletries kit available)
- All your medication – so your treatment can begin as soon as possible – this particularly applies to gene therapy drugs which are not stocked by pharmacy
- Your nebuliser, if you have one, so you can continue with your inhaled medications
- Trainers and a gym kit!
In addition to the standard BRI food service (which includes delicious “ethnic” options such as yummy curries) you will have access to microwaveable platter meals.
There is a pantry for patients with a fridge, kettle and microwave for you to make your own snacks.
What happens when I come in
You will be admitted to hospital by a doctor – “in hours” this will normally be by a member of the BACFC team, “out of hours” it will often be by a member of the on call medical team, who will normally have been pre-warned of your admission and received a plan. Please make sure that the admitting doctor goes through your medication with you to make sure that the hospital prescription chart is correct.
Overnight guests are not allowed other than in exceptional circumstances, and must be agreed with Nursing staff.
How long will I need to stay in hospital?
This varies a lot. We normally recommend 10-14 days for courses of intravenous antibiotics. If you have been trained to self-administer intravenous antibiotics at home, you may be able to complete your course of antibiotics at home: we will advise you as to whether we recommend staying in hospital, or going home to complete the course.
If you wish to complain please consider raising your concerns with the Nurse in Charge or the Consultant on the Ward Round. The Patient Advice and Liaison Service (PALS) is always available to help you – they can be found by BRI Reception or on their website.
We may ask you to go to the Discharge Lounge after you have been discharged in order that your room might be deep cleaned in preparation for the arrival of the next patient (often another person with CF).